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What You Don't Know Can Hurt You
Protecting our Children and Future Generations with Genetic Information
Thursday, May 8, 2003 - 8:00 P.M.

Congregation Ner Tamid, Sisterhood and Men's Club
and
Fragile X Association of Southern California
Coordinated by
Dr. David & Miriam Ackermann
presents a forum:

THE IMPLICATIONS AND AWARENESS OF YOUR GENETIC CODE

Well over 100 people attended this informative community meeting and many
questions concerning genetic information and research, Regional Center resources,
and educational rights were answered. Also presented was a parent's view of
how the community can help, learn and accept families with children who
have developmental disabilities within their own community.

THE PANELISTS

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L-R Caroline Robb, Dina Ackermann, Sri Moedjono, M.D. and Louse Gane, M.S.

LOUISE GANE, M.S.
Genetic Associate at the M.I.N.D. Institute
(Medical Investigation of Neurodevelopmental Disorders
University of California School of Medicine at Davis

SRI MOEDJONO, M.D.
Pediatrician/Genetic Advisor
Harbor Regional Center
Torrance, California

DINA ACKERMANN
High School Teacher for the developmentally disabled at Leuzinger High School
Expert and Activist for legal rights of the developmentally disabled

CAROLINE ROBB
Mother of a typical child and one with autism and Fragile X Syndrome.
Board Member of the Fragile X Association of Southern California

 

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Last modified: May 09, 2003