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Living With Fragile X Premier |
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Wednesday, 25 March 2009 19:00 |
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The Fragile X Association of Southern California is hosting a premiere for the wonderful documentary Living With Fragile X. For more information on the documentary, click the link in the menu on the left-hand side of the page. To view/download the event flier, click here.
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Wednesday, 25 March 2009 18:39 |
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Get it while it's hot...our most recent newsletter! Click the link below to download/view the March '09 issue of the FragileXPress to read more about our upcoming premiere of the documentary Living With Fragile X, a new research opportunity, and some great articles from our members. Check it out! Click to View/Download |
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Wednesday, 17 December 2008 20:23 |
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We're happy to announce that our 2008 holiday letter has gone out! To view it, click here (PDF viewer required). |
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January Newsletter is Here! |
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Tuesday, 27 January 2009 12:47 |
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The latest newsletter is now available online! Click the link below to download/view the January '09 issue of the FragileXPress. Click to View/Download |
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Wednesday, 17 December 2008 19:59 |
(article by Stephanie Rhines)
It took us 16 years to get use to the idea of sending Nick to camp. Although he loves being around people, he is mostly non-verbal with non-family members. We always had worries about him being able to communicate his needs and/or concerns to camp counselors.
Well, we took a small step towards this goal in the Spring of 2008. We got a list of camps from the Regional Center. After calling around and figuring out that spring is a little late to look into summer camps, we found Pilgrim Pines. They were having an Open House in May. Well, that is just what Nick and I needed, to see the camp before any commitment. The drive up there was familiar because it was near the apple farms where we had gone for a 5th grade field trip and also a So. Calif. Fragile X Family Event. The familiarity helped a lot.
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Read more...
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